THE BONE MARROW BIOPSY

The plan was to have my bone marrow biopsy on Monday, Oct. 28. For unknown reasons, other than that hospitals are on their own time schedule, my biopsy got pushed to Tuesday morning, which turned into Tuesday afternoon…you get the picture. I finally was in the procedure room around 1 in the afternoon on Tuesday. It wasn’t my doctor doing the procedure and they gave me different medication than what I had received last time. Needless to say, I was a bit apprehensive. There is something to be said about intuition because it didn’t go as smoothly as I wished it had gone. Oh well! Remember that book I told you to read, Zen: The Art of Happiness? Yeah, I am sure you all went out to get it and you’ve already read the whole thing. Okay, I know that’s not the case, but it still should be on your “To-Read List”. One of its main points is how to find the positive things in crappy and even terrible situations. I’m sure it is something that each of us can benefit from in our lives. So…the bone marrow biopsy was not the lovely event that I thought it was going to be, but at least it is over with. And now we await the results. It probably won’t be until the end of the week or the beginning of next week to find out what our next step is in my treatment plan.

In unrelated leukemia news (other than the fact that I am hospital-ridden, so I actually have time for these things), I have been sucked in the world of Game of Thrones. Thank you once again Steve Jobs and Jackie. I have season 1 of GOT under my belt and will start season 2 when I know I can keep my eyes open. Its not that the show is boring, it’s the darn meds that I am on. Promise! I also started a new book today called Farm City: The Education of an Urban Farmer by Novella Carpenter. It’s a fiction book based on a woman who lives in Oakland, CA and makes her backyard (well abandoned land right next to her apartment) into a garden and mini-farm. I’m only a fourth of the way through the book, but its light reading, interesting and humorous. Its giving us all the message that its not that hard to grow vegetables and raise chickens for our own consumption. I guess Carpenter didn’t get the message that I’ve killed every houseplant I’ve ever had. Don’t get me wrong, I do think buying local and pesticide/hormone-free products if possible is the way to go. I just don’t foresee gardening or plucking turkeys in my near future.

Today was really a quiet day. I am still battling headaches. The spot in my lower back where the doctor hammered a big needle into it is quite sore. Imagine that. I plan on going on a walk before I settle in for a night of Modern Family…and whatever that new comedy is that’s on afterwards. (Not sure if it’s a good sign that I can’t remember the show’s name, but I find it somewhat entertaining.)

Be looking for tomorrow’s blog – my brother Braydon is organizing a benefit concert for all of you Chicago people! I will be giving you ALL of the info tomorrow! And just another thank you to everyone that follows the blog and to all the people who have given such awesome support. It means the world to me.

THANK YOU STEVE JOBS

My recent absence can be blamed on Apple TV. (Thank you from the bottom of my heart, Jackie. And thank you Steve Jobs for inventing the Apple TV.) I was behind on two great shows – “Mad Men” and “Breaking Bad”. I had marathons of both shows over the past few days – ever since I got back from Valley Hospital. After I watch the series finale of “Breaking Bad” (which wil be today), I have the important decision of deciding which series will be next. The contenders are “Game of Thrones”, “Homeland”, “Masters of Sex”, “Boardwalk Empire” and whatever else may tickle my fancy.

I was at Valley Hospital for less than 24 hours. The neurosurgeon looked at my CT scan and decided that the bleed was stable and they would not be operating on me. They packed me back up and sent me back to Camp Summerlin. The good thing was that I got a new room at Summerlin and now I have a view of the mountains and I can see the sunrise if I’m up that early in the morning. Its the little things that you learn to appreciate. I was also glad to be back at Summerlin because it is what I am used to – the routine, my favorite nurses and our refrigerator stocked with chocolate pudding and ice cream. Valley Hospital did not have a stocked patient refrigerator.

Unfortunately, I am still having headache issues due to the bleed. As I mentioned, the bleed is stable. When someone has a bleed like that, the brain can heal itself and the blood reabsorbs back into the brain. The downside is that it can cause headaches for months afterwards and that is what is happening to me now. I have been working with my attending physician and a neurologist to get the right medications in place so that I am not always in pain.

On Monday I will have a bone marrow biopsy and we typically get results 3-4 days later. The results from the biopsy will help guide us in the next steps of my treatment plan.